Vol. 1,     No. 1     February 15, 2001     http://the-ddic.com

Welcome to BeforeUgo Newsletter

This is our first newsletter and we hope you like it...at least we hope you find it useful. This newsletter is in response to many people who have been asking Judith Lee for a newsletter with information on death and dying.

In addition to the newsletter there is also a web site: http://the-ddic.com up and running for those of you who have computers and are on the Internet. This newsletter is found at the web site and is so designed that anyone can make a printed copy of the newsletter and give it to anyone who doesn’t do the Net.

At this time the newsletter will be limited to two pages, but we will pack the two pages with as much info for you as we can. News stories, features, helpful hints, people and places you should know about... anything we find that we think will be helpful.

And we want to make it entertaining for you to read so we will include anecdotes and funny stories whenever possible. Our goal is to get the information out to you.

This will be a monthly newsletter. A copy may be obtained off the Internet or at any of Judith Lee’s seminars.


Regarding The Web Site...

The Web site offers news stories, articles, advice columns, speakers’ schedule and a resource page. The Web site has been designed so that just about anyone with any kind of computer and internet server will be able to get on the site and check out the various pages. There are no fancy graphics and the text is presented in a clear easy-to-read format.


People, Places & Things

Alzheimer’s Association
    1-800-272-3900
The national headquarters will provide printed material and local references.

Celestis, Inc.
    800-522-3217
For-profit business dealing in commemorative cremains scattering in outer space.

Books

Learning To Say Goodbye: When A Parent Dies, 1976, Eda LeShan, Macmillan Publishing Co., Inc., New York.

The Hour Of Our Death, 1981, Philippe Aries, Alfred A. Knoph, Inc.

How We Die, 1994, Sherwin Nuland, MD, Alfred A. Knoph Inc., New York.

Q&A COLUMN

- by Judith Lee

The Need To Know

Hello. Welcome to the "Q&A" column. As a way of introduction, this column topic will deal with the need to have information on death and dying issues.

Historically the United States has had a kind of schizophrenic attitude towards death and dying. We are fascinated with it, yet we want to keep it at a distance.

Before World War II more people died at home, therefore death was seen by the living. People had experience in dealing with the death of someone. While this was true for adults children have always been shielded from the "horrors of death". Today many adults have never seen a dead person, much less had to be responsible for a deceased person.

Yet, with 6,000 deaths a day people need to know what to do. This column will try to give you answers to your questions on what to do. In the United States people generally don’t want to discuss their own impending death so no plans are made for the future. It is usually after a death, the people responsible for the deceased need to get information and make decisions, often while under great mental stress.

This column will become a resource for you. You may use it as a resource in making plans for what you want done after your own death, or as a resource because you are responsible for a deceased person. And if you know of someone who is going to be responsible for a deceased person they may be grateful if you were able to pass this information to them.

This column will give you information in an easy-to-read style, laced with humor and human interest stories, so this topic of death and dying won’t be quite so hard for you to accept. We look forward to giving you some of the answers to this most touchy of topics, death and dying.


Helpful Hints...

  • Get a Medical Directive if you don’t already have one. Each state has their own version. They are free.

  • Tell folks what kind of funeral you want. Much stress and worry can be eliminated by telling people what you want. They are not mind-readers.

  • Funerals can run up to $10,000-$15,000 each, so know what you are doing. This is a major expense!


  • Choices: Sounds of Silence On Matters of Hospice

    - by Eric Nagourney

    New York Times; Health Section, February 13, 2001

    Despite recent growth of the hospice field, intended to help the terminally ill die as peacefully as possible, most Americans still die in hospitals. Other studies had found that doctors often failed to tell patients' families about their options; now, a new report suggests that nurses, too, may play a role.

    In the current issue of The Journal of Professional Nursing, researchers reported that more than half the nurses studied in a hospital setting said they never discussed hospice care with their patients.

    And while most reported using some of techniques employed in hospices to relieve pain and anxiety, many said they lacked important knowledge about hospice and palliative care.

    The study, conducted by researchers from Yale, the John D. Thompson Hospice Institute of Branford, Conn., and the V.A. Connecticut Healthcare System, involved 180 nurses in six hospitals in Connecticut. The results, they said, suggest that nursing programs need to do a better job of educating their students about hospice care.

    Dr. Elizabeth Bradley, the study's principal investigator and an assistant professor of epidemiology and public health at Yale, said that part of the problem might come down to tradition. "There is an age- old history of the role of the nurse and the role of the physician," Dr. Bradley said. "The fact is, breaking bad news is probably something, generally, people have thought of as the physician's role."